What to say/not to say to someone with Endometriosis.


(for more information please visit Endometriosis UK)

What not to say:

  • You don’t look like you’re in pain.
  • Just go and get a hysterectomy and then the pain will go away.
  • It could be worse you could have…
  • I thought endometriosis was only painful with your periods.
  • I have a friend with Endometriosis and she got pregnant, so you will be able to as well.

These are just some of the things I have had thrown at me by doctors, family members and friends. Endometriosis affects 1 in 10 women in the UK. [maybe some more facts that help explain why the above are bad things to say. eg common myth that it is only painful with periods but the triggers of pain are complex and so can happen any time or something; why trying to give false hope isn’t as nice as you probably think you’re being; etc]

What to say:

  • I’m so proud of you.
  • Your pain and your feelings are valid.
  • You are not to blame for this.
  • I can’t imagine what you going through, what can I do to help?
  • I am always here for you.


Update on my endometriosis journey It’s been a year since I was diagnosed with Endometriosis, yesterday I got a surprise call with a date for my operation to try and improve it, I literally forgot I was even on a waiting list. I feel  hopeful and relived the operation is finally happening.

Are you suffering from Endometriosis? Please share your story below.



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