A girl living with Endometriosis

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What is Endometriosis?

Endometriosis can be a painful disorder. The tissue is similar to the tissue that normally lines the inside of your uterus grows outside your uterus. Endometriosis involves your ovaries, fallopian tubes and the tissue lining your pelvis.

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I will never forget that first pain I experienced in my stomach all the way to my belly button. It was seven days after my operation, I was walking around Tesco’s doing my weekly food shop when I suddenly felt this sharp pain that made me want to fall to the ground and made me want to hug a pillow. I had never experienced anything like it, whenever Ii describe it to anyone I say it’s like having a painful muscle spasm or having barbed wire inside of you twisting your inside of you.

The pain felt like it lasted for a good few minutes when in reality it seconds was seconds. I felt anxious/embarrassed looking around at the people who just stood there staring at me as I got up.  That was my first pain, it got much worse and became regular. This is when I started strolling through internet pages to try and find answers

I went suffered for years with this pain until the day I finally dragged myself to the doctors. Now anyone reading this who has Endometriosis you will know how hard it is to try and make a doctor listen and referral you. It took 8 appointments for someone to finally listen to me. Trying to describe the pain to the doctor was a challenge, some doctors passed it off like it was just going period pain. (This made me frustrated) I know my body. Eventually, I got a hospital referral. In the meantime, I was prescribed the contraception pill to help with the pain. (it didn’t help with the pain it just slowed the process down at least this is what I was told). I wasn’t giving much information, I just remember doing some research on it, and soon learned that a lot of women suffer from this.

The hospital appointment finally happed after a year of waiting happened. I remember getting anxious and I didn’t know what questions to ask, I felt embarrassed. I remember the topic of fertility coming up, which felt so awkward having that conversation with someone who I’m not close to.

The physical and emotional effect it’s had is draining on a person. I’m happy that people are now talking about this and sharing their experiences, it helps a lot. It’s something that affects women every day. I feel like I live in fear of being able to do what I love, every physical thing I do I’m scared that the pain will come back. You may not be able to see it, but it’s there and I’m living with it, trying to tell myself it will get better.

I’m hoping one day I will have answers to my questions, I’m hoping one day I won’t have to put up with the pain, hopefully, learn how to live with it.

 

 

 

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